Publications
Howie L, Orevillo K, Tu M, Schwartz A, Funk M, Talent C, Capozza K. The burden of atopic dermatitis in Australia: Medical care, treatment satisfaction, financial impact, long-term control and quality of life. Australas J Dermatol. 2024 May 8. doi: 10.1111/ajd.14299. Epub ahead of print. PMID: 38715470.
Capozza K, Tu M, Schwartz A, de Tena Smith ÁL. Atopic dermatitis in Spain: Patient and caregiver experiences with disease burden, care and treatments. Aten Primaria. 2024 May;56(5):102908. doi: 10.1016/j.aprim.2024.102908. Epub 2024 Mar 12. PMID: 38479199; PMCID: PMC10944104.
Hartono, S.P., Chatrath, S., Aktas, O. et al. Interventions for anxiety and depression in patients with atopic dermatitis: a systematic review and meta-analysis. Sci Rep 14, 8844 (2024). https://doi.org/10.1038/s41598-024-59162-9
Capozza K, Tu M, Schwartz A, Johnson JL, Ladner M. Patients' and Caregivers' Experiences Navigating the Burden of Atopic Dermatitis in Argentina. Medicina (Kaunas). 2024 Mar 31;60(4):584. doi: 10.3390/medicina60040584. PMID: 38674230; PMCID: PMC11052293.
AAAAI/ACAAI JTF Atopic Dermatitis Guideline Panel; Chu DK, Schneider L, Asiniwasis RN, Boguniewicz M, De Benedetto A, Ellison K, Frazier WT, Greenhawt M, Huynh J, Kim E, LeBovidge J, Lind ML, Lio P, Martin SA, O'Brien M, Ong PY, Silverberg JI, Spergel JM, Wang J, Wheeler KE, Guyatt GH; Patient Groups, GlobalParents for Eczema Research; Capozza K; National Eczema Association; Begolka WS; Evidence in Allergy Group; Chu AWL, Zhao IX, Chen L, Oykhman P, Bakaa L; AAAAI/ACAAI Joint Task Force on Practice Parameters; Golden D, Shaker M, Bernstein JA, Greenhawt M, Horner CC, Lieberman J, Stukus D, Rank MA, Wang J, Ellis A, Abrams E, Ledford D, Chu DK. Atopic dermatitis (eczema) guidelines: 2023 American Academy of Allergy, Asthma and Immunology/American College of Allergy, Asthma and Immunology Joint Task Force on Practice Parameters GRADE-and Institute of Medicine-based recommendations. Ann Allergy Asthma Immunol. 2023 Dec 18:S1081-1206(23)01455-2. doi: 10.1016/j.anai.2023.11.009. Epub of print. PMID: 38108679.
Moxham F, Cutaran C, Sadocha J, Capozza K. Hidden gems: a pilot project to solicit and reward patients' and caregivers' ideas for research. Res Involv Engagem. 2023 Oct 13;9(1):93. doi: 10.1186/s40900-023-00473-y. PMID: 37833815; PMCID: PMC10576294.
Chong AC, Schwartz A, Smith Begolka W, Tullos KZ, Capozza K. Specialist care and mental health is associated with long-term control of atopic dermatitis symptoms: A cross-sectional survey of patients and caregivers in the United States. JAAD Int. 2023 Aug 31;13:112-114. doi: 10.1016/j.jdin.2023.08.016. PMID: 37779557; PMCID: PMC10541459.
Chatrath S, LeBovidge J, Jack C, Abuabara K, Schneider LC, Capozza K, Kelley K, Silverberg JI. Mental health interventions for atopic dermatitis: knowledge gaps, pilot programmes and future directions. Clin Exp Dermatol. 2023 Dec 19;49(1):9-17. doi: 10.1093/ced/llad315. PMID: 37706273.
Chu AWL, Wong MM, Rayner DG, Guyatt GH, Díaz Martinez JP, Ceccacci R, Zhao IX, McMullen E, Srivastava A, Wang J, Wen A, Wang FC, Brignardello-Petersen R, Izcovich A, Oykhman P, Wheeler KE, Wang J, Spergel JM, Singh JA, Silverberg JI, Ong PY, O'Brien M, Martin SA, Lio PA, Lind ML, LeBovidge J, Kim E, Huynh J, Greenhawt M, Gardner DD, Frazier WT, Ellison K, Chen L, Capozza K, De Benedetto A, Boguniewicz M, Smith Begolka W, Asiniwasis RN, Schneider LC, Chu DK. Systemic treatments for atopic dermatitis (eczema): Systematic review and network meta- analysis of randomized trials. J Allergy Clin Immunol. 2023 Dec;152(6):1470-1492. doi: 10.1016/j.jaci.2023.08.029. Epub 2023 Sep 9. PMID: 37678577.
Chu DK, Chu AWL, Rayner DG, Guyatt GH, Yepes-Nuñez JJ, Gomez-Escobar L, Pérez-Herrera LC, Díaz Martinez JP, Brignardello-Petersen R, Sadeghirad B, Wong MM, Ceccacci R, Zhao IX, Basmaji J, MacDonald M, Chu X, Islam N, Gao Y, Izcovich A, Asiniwasis RN, Boguniewicz M, De Benedetto A, Capozza K, Chen L, Ellison K, Frazier WT, Greenhawt M, Huynh J, LeBovidge J, Lio PA, Martin SA, O'Brien M, Ong PY, Silverberg JI, Spergel JM, Smith Begolka W, Wang J, Wheeler KE, Gardner DD, Schneider L. Topical treatments for atopic dermatitis (eczema): Systematic review and network meta-analysis of randomized trials. J Allergy Clin Immunol. 2023 Dec;152(6):1493-1519. doi: 10.1016/j.jaci.2023.08.030. Epub 2023 Sep 9. PMID: 37678572.
Ratley G, Sun AA, Capozza K, Barta K, Myles IA. Survey of topical exposure concerns for patients and caregivers dealing with atopic dermatitis. Front Allergy. 2023 Aug 10;4:1210973. doi: 10.3389/falgy.2023.1210973. PMID: 37637138; PMCID: PMC10448960
Chong AC, Schwartz A, Lang J, Ong PY, Myles IA, Silverberg JI, Capozza K. Patients' and Caregivers' Preferences for Mental Health Care and Support in Atopic Dermatitis. Dermatitis. 2023 Aug 9. doi: 10.1089/derm.2023.0111. Epub ahead of print. PMID: 37579072
Paller AS, Weidinger S, Capozza K, Pink AE, Tang M, Guillaume X, Praestgaard A, Leclerc M, Chuang CC, Thomas RB, Prescilla R. Similarities and Differences in the Perception of Atopic Dermatitis Burden Between Patients, Caregivers, and Independent Physicians (AD-GAP Survey). Dermatol Ther (Heidelb). 2023 Apr;13(4):961-980. doi: 10.1007/s13555-022-00850-7. Epub 2023 Mar 15. PMID: 36922463; PMCID: PMC10060494.
Maleki-Yazdi KA, Heen AF, Zhao IX, Guyatt GH, Suzumura EA, Makhdami N, Chen L, Winders T, Wheeler KE, Wang J, Spergel J, Silverberg JI, Ong PY, O'Brien M, Martin SA, Lio PA, Lind ML, LeBovidge J, Kim E, Huynh J, Greenhawt M, Frazier WT, Ellison K, Capozza K, De Benedetto A, Boguniewicz M, Begolka WS, Asiniwasis RN, Schneider LC, Chu DK. Values and Preferences of Patients and Caregivers Regarding Treatment of Atopic Dermatitis (Eczema): A Systematic Review. JAMA Dermatol. 2023 Mar 1;159(3):320-330. doi: 10.1001/jamadermatol.2022.6045. PMID: 36696136.
Capozza K. Lost in translation: understanding the experience of atopic eczema among non-English-speaking families. Br J Dermatol. 2023 Mar 30;188(4):456-457. doi: 10.1093/bjd/ljad015. PMID: 36655520.
Capozza K, Funk M, Hering M, Lang J, Merhand S, Manion R, Orevillo K, Picozza M, Proctor A, Schwennesen T, Begolka WS, Tullos K, Talent C, Tu M, Vastrup AS, Schwartz A. Patients' and Caregivers' Experiences With Atopic Dermatitis-Related Burden, Medical Care, and Treatments in 8 Countries. J Allergy Clin Immunol Pract. 2023 Jan;11(1):264-273.e1. doi: 10.1016/j.jaip.2022.10.032. Epub 2022 Nov 2. Erratum in: J Allergy Clin Immunol Pract. 2023 Sep;11(9):2961-2962. PMID: 36332836.
Leshem YA, Chalmers JR, Apfelbacher C, Katoh N, Gerbens LAA, Schmitt J, Spuls PI, Thomas KS, Howells L, Williams HC, Simpson EL; Harmonising Outcome Measures for Eczema (HOME) initiative. Measuring Atopic Eczema Control and Itch Intensity in Clinical Practice: A Consensus Statement From the Harmonising Outcome Measures for Eczema in Clinical Practice (HOME-CP) Initiative. JAMA Dermatol. 2022 Dec 1;158(12):1429-1435. doi: 10.1001/jamadermatol.2022.4211. PMID: 36223090.
Lou TM, Zhang KL, Slesinger NC, Taddeo M, Serrano E, Begolka WS, Capozza K, Paller AS, Griffith JW, Fishbein AB. Positive Psychology Themes in Interviews of Children With Atopic Dermatitis: Qualitative Study. JMIR Pediatr Parent. 2022 Sep 14;5(3):e38725. doi: 10.2196/38725. PMID: 36103242; PMCID: PMC9520397.
Yin Y, Capozza K, Shao Y, Tu M, Ma P, Zeng-Treitler Q, Sun AA, Myles IA. What are patients saying about their experience with atopic dermatitis? Insights from a machine learning analysis of online comments. Skin Health Dis. 2022 Feb 2;2(3):e100. doi: 10.1002/ski2.100. PMID: 36092260; PMCID: PMC9435445
Kim RW, Barta K, Begolka WS, Capozza K, Eftekhari S, Tullos K, Tomaszewski N, Snell-Rood C, Abuabara K. The quantitative impact of atopic dermatitis on caregivers across multiple life domains. Br J Dermatol. 2022 Dec;187(6):1041-1043. doi: 10.1111/bjd.21855. Epub 2022 Sep 26. PMID: 36056761
Capozza K, Vastrup A, Proctor A, Roberts A, Picozza M, Manion R, Talent C, Hering M, Merhand S, Funk M, Tullos KZ, Arents BWM. The sound of silence: where are the voices of patients in eczema guideline development? Br J Dermatol. 2022 Dec;187(6):1005-1006. doi: 10.1111/bjd.21822. Epub 2022 Sep 2. PMID: 36052766; PMCID: PMC10087290.
Oykhman P, Dookie J, Al-Rammahy H, de Benedetto A, Asiniwasis RN, LeBovidge J, Wang J, Ong PY, Lio P, Gutierrez A, Capozza K, Martin SA, Frazier W, Wheeler K, Boguniewicz M, Spergel JM, Greenhawt M, Silverberg JI, Schneider L, Chu DK. Dietary Elimination for the Treatment of Atopic Dermatitis: A Systematic Review and Meta-Analysis. J Allergy Clin Immunol Pract. 2022 Oct;10(10):2657-2666.e8. doi: 10.1016/j.jaip.2022.06.044. Epub 2022 Jul 19. PMID: 35987995.
Kim RW, Barta K, Begolka WS, Capozza K, Eftekhari S, Tullos K, Tomaszewski N, Snell-Rood C, Abuabara K. Qualitative analysis of the impact of atopic dermatitis on caregivers. Br J Dermatol. 2022 Dec;187(6):1038-1041. doi: 10.1111/bjd.21828. Epub 2022 Sep 26. PMID: 35972353
Agarwal A, Chen L, Capozza K, Roberts A, Golden DBK, Shaker MS, Guyatt GH, Schneider LC, Chu DK. Trustworthy Patient-Centered Guidelines: Insights From Atopic Dermatitis and a Proposal for the Future. J Allergy Clin Immunol Pract. 2022 Nov;10(11):2875-2877. doi: 10.1016/j.jaip.2022.06.017. Epub 2022 Jul 7. PMID: 35810111.
Elsawi R, Dainty K, Smith Begolka W, Barta K, Butler L, Capozza K, Eftekhari S, Tullos KZ, Wu W, Drucker AM. The Multidimensional Burden of Atopic Dermatitis Among Adults: Results From a Large National Survey. JAMA Dermatol. 2022 Aug 1;158(8):887-892. doi: 10.1001/jamadermatol.2022.1906. Erratum in: JAMA Dermatol. 2022 Nov 1;158(11):1333. PMID: 35767267; PMCID: PMC9244770.
Capozza K, Schwartz A, Lang JE, Chalmers J, Camilo J, Abuabara K, Kelley K, Harrison J, Vastrup A, Stancavich L, Tai A, Kimball AB, Finlay AY. Impact of childhood atopic dermatitis on life decisions for caregivers and families. J Eur Acad Dermatol Venereol. 2022 Jun;36(6):e451-e454. doi: 10.1111/jdv.17943. Epub 2022 Jan 29. PMID: 35048408
Capozza K. Never the twain shall meet? Bridging the divide between patient perspectives and health professionals and systems. Br J Dermatol. 2021 Apr;184(4):587-588. doi: 10.1111/bjd.19545. Epub 2020 Oct 13. PMID: 33048345.
Capozza K, Gadd H, Kelley K, Russell S, Shi V, Schwartz A. Insights From Caregivers on the Impact of Pediatric Atopic Dermatitis on Families: "I'm Tired, Overwhelmed, and Feel Like I'm Failing as a Mother". Dermatitis. 2020 May/Jun;31(3):223-227. doi: 10.1097/DER.0000000000000582. PMID: 32091463
Capozza K, Schwartz A. Does it work and is it safe? Parents' perspectives on adherence to medication for atopic dermatitis. Pediatr Dermatol. 2020 Jan;37(1):58-61. doi: 10.1111/pde.13991. Epub 2019 Aug 28. PMID: 31464037
Maarouf M, Kromenacker B, Capozza KL, Kempton D, Hendricks A, Tran K, Shi VY. Pain and Itch Are Dual Burdens in Atopic Dermatitis. Dermatitis. 2018 Sep/Oct;29(5):278-281. doi: 10.1097/DER.0000000000000406. PMID: 30179978
Capozza K, Shao Y, Zeng Q. "Crowdsourcing" a patient-centered research agenda for pediatric atopic dermatitis. Int J Dermatol. 2016 Dec;55(12):1414-1416. doi: 10.1111/ijd.13359. Epub 2016 Jul 14. PMID: 27416358
Capozza K, Woolsey S, Georgsson M, Black J, Bello N, Lence C, Oostema S, North C. Going mobile with diabetes support: a randomized study of a text message-based personalized behavioral intervention for type 2 diabetes self- care. Diabetes Spectr. 2015 May;28(2):83-91. doi: 10.2337/diaspect.28.2.83. PMID: 25987806; PMCID: PMC4433079.
Abebe NA, Capozza KL, Des Jardins TR, Kulick DA, Rein AL, Schachter AA, Turske SA. Considerations for community-based mHealth initiatives: insights from three Beacon Communities. J Med Internet Res. 2013 Oct 15;15(10):e221. doi: 10.2196/jmir.2803. PMID: 24128406; PMCID: PMC3806518.
UC Berkeley Labor Center; Jacobs K, Capozza K, Roby DH, Kominski GF, Brown ER. Health coverage expansion in California: what can consumers afford to spend? Policy Brief UCLA Cent Health Policy Res. 2007 Sep:1-7. PMID: 17972402.
Tu, Michelle & Amaro, Lauren & Kidder, Bennett & Kelley, Keri & Capozza, Korey & Schwartz, Alan. (2023). 318 Facilitating mentorship for caregivers of children with atopic dermatitis: the supporting eczema caregivers initiative. British Journal of Dermatology. 188. 10.1093/bjd/ljac140.014. Lou TM, Zhang KL, Slesinger NC, Taddeo M, Serrano E, Begolka WS, Capozza K, Paller AS, Griffith JW, Fishbein AB, Positive Psychology Themes in Interviews of Children with Atopic Dermatitis: Qualitative Study, JMIR Pediatr Parent 2022;0(0):e0 doi: 10.2196/387
The More Than Skin Deep Meeting: Understanding the Lived Experience of Eczema, report from the Patient Focused Drug Development Meeting, September 2019. Report link.
Capozza, K. and Redding, M. A Call for a Compassionate Approach to Itch-related Scratching in Children With Eczema, The Dermatologist, January 2020. https://www.the-dermatologist.com/article/call-compassionate-approach-itch-related-scratching-children-eczema
Capozza, K, Schwartz, A. Does it work and is it safe? Parents' perspectives on adherence to medication for atopic dermatitis. Pediatr Dermatol. 2019; 00: 1– 4. https://doi.org/10.1111/pde.13991
Maarouf, M, Kromenacker, B., Capozza, K., Kempton, D., Hendricks, A., Tran, K., Shi, V. Pain and Itch Are Dual Burden in Atopic Dermatitis. Dermatitis: August 31, 2018 - Volume Publish Ahead of Print - Issue - p doi: 10.1097/DER.0000000000000406"
Home Grown Innovations from Families Impacted by Severe Eczema, The Dermatologist, February/March 2017
Capozza K, Shao Y, Zeng Q. "Crowdsourcing" a patient-centered research agenda for pediatric atopic dermatitis. Int J Dermatol. 2016 Dec;55(12):1414-1416. doi: 10.1111/ijd.13359. Epub 2016 Jul 14. PMID: 27416358.
Crowdsourcing pinpoints unmet needs in eczema research," The Dermatology Times, October 10, 201